Patient Resources

Community & Educational Resources

The Cutaneous Lymphoma Foundation offers a variety of educational resources through live events, free publications, and expert articles and videos. We also help create a cutaneous lymphoma community through sharing personal stories of help and hope and our patient networking groups.

Stories of Help and Hope

My Personal Journey with Cutaneous Lymphoma
Gary Robinson shares his experience living with cutaneous lymphoma and recommendations for those newly diagnosed.
Patient Resources

2017 Patient Educational Forum - Memphis, TN
Video recordings and available presentation slides from the 2017 Patient Educational Forum in Memphis, TN
Patient Resources

CUTANEOUS LYMPHOMA OVERVIEW

2016 2-Day Patient Conference in New York, NY
Expert Presenter: Ellen Kim, MD, Perelman School of Medicine at the University of Pennsylvania

Dr. Ellen Kim provides an overview of cutaneous lymphomas, addressing common questions concerning:
- Non-Hodgkins Lymphoma
- Blood involvement
- Importance of knowing your subtype
- Why it takes so long to be diagnosed
- Value of multidisciplinary approach to care
- Cause of disease
- General principles of treatment
- Relationship between the clinical and pathology in diagnosis
- Multiple biopsies
Patient Resources

2016 2-Day Patient Conference - New York
Video recordings of the 2-Day Patient Conference held in New York, NY in conjunction with the 3rd World Congress of Cutaneous Lymphomas.
Patient Resources

2016 2-Day Patient Conference - Chicago
Video recordings and available presentation slides from the 2016 2-Day Patient Conference in Chicago, Illinois.
Patient Resources

NODE PATHOLOGY AND FLOW CYTOMETRY
2016 Patient Educational Forum - Los Angeles, CA
Expert Presenter: Sherif Rezk, MD, US Irvine Medical Center

Overview of node pathology and flow cytometry in diagnosing cutaneous lymphoma.
Presentation Slides Available
Stories of Help and Hope

My Personal Journey with Lymphomatoid Papulosis
Nikki Thomason shares how her life changed after being diagnosed with lymphomatoid papulosis and how she created an online community for others diagnosed with the disease.