Our Partners

The Cutaneous Lymphoma Foundation partners with the following organizations to enhance its work of making sure that each person with cutaneous lymphoma gets the best care possible.

World Skin Health Coalition small

World Skin Health Coalition

The World Skin Health Coalition is a patient-led, multi-stakeholder group of like-minded organizations united under a shared vision: to improve health outcomes for everyone who is affected by dermatological diseases/conditions globally.

Established in May 2022, the Coalition harnesses the collective power of partners to raise awareness about the impact of dermatological diseases and conditions and increase their global health policy prioritisation.

The Coalition is dedicated to improving access to diagnosis, care, and treatment, for people living with skin diseases and conditions, regardless of their location in the world.
Triage Health

Triage Health

Triage Health, a program of Triage Cancer, provides free education on the legal and practical issues related to navigating a chronic or serious medical condition.

Triage Health has extensive free resources for individuals diagnosed with a chronic or serious medical condition, caregivers, and health care professionals, on the legal and practical issues that may arise after a diagnosis. Free animated videos, Quick Guides & Checklists, state laws, and other resources that may be helpful are available on their website. Their free resources are applicable to anyone with a serious medical condition, or the general public.

American Academy of Dermatology

The American Academy of Dermatology: Promoting leadership in dermatology and excellence in patient care through education, research and advocacy. For more information on the American Academy of Dermatology, visit their website or call 866.503.SKIN (7546).

CancerCare

CancerCare helps individuals and families better cope with and manage the emotional and practical challenges arising from cancer. Our services–for patients, survivors, loved ones, caregivers, and the bereaved–include counseling and support groups, educational publications and workshops, and financial assistance. All of our services are provided by professional oncology social workers and are offered completely free of charge. To speak directly with a CancerCare social worker, call 1.800.813.HOPE (4673).

Coalition of Skin Diseases

The Coalition of Skin Diseases advocates on behalf of individuals with skin disease. The CSD supports basic scientific and clinical research, fosters physician and patient education, generates awareness of skin diseases, and unifies member organizations through the sharing of mutual concerns.

Genetic Alliance

Genetic Alliance, a 501 (c)(3) not-for-profit organization, engages individuals, families, and communities to transform health. Genetic Alliance is resolute that people come first. We partner with individuals and communities to transform health systems to respond to what people most need. We convene powerful networks, deliver actionable information, build intuitive tools, and drive policy decisions.

International Alliance of Dermatology Patient Organizations

The International Alliance of Dermatology Patient Organizations (IADPO) is a non-profit organization made up of skin patient associations from around the world. IADPO works with skin patient associations so that their campaigns for improved medical care, greater public understanding and increased research will improve the lives of people who live with skin disease and reach a wider audience.

Triage Cancer

Triage Cancer® is a national, nonprofit organization that provides free education on legal and practical issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources. The Legal & Financial Navigation Program offers one-on-one help with issues such as work, health and disability insurance, finances, and estate planning. CancerFinances.org is an online toolkit to help people manage finances after a cancer diagnosis. 

Lymphoma Coalition

The Lymphoma Coalition is a global network of worldwide not for profit lymphoma patient organizations with a vision to free the world of lymphomas. The coalition is made up of 56 member organizations from 40 countries.

The Lymphoma Coalitions's mission is: to raise awareness of lymphomas; to improve the understanding of lymphomas; to ensure best practice management of lymphomas; and to encourage the creation of new lymphoma patient groups in countries where one does not presently exist.

Lymphoma Canada

Lymphoma Canada is a charitable not-for-profit organization that provides information on new treatments and research as well as support for patient education workshops and seminars to help people understand and manage their cancer. The Foundation supports lymphoma-specific research through the creation of fellowships as well as providing community-based resources to help people learn about and cope with their cancer. For more information on the Lymphoma Foundation Canada, visit their website or phone 866.659.5556.

Lymphoma Research Foundation

The Lymphoma Research Foundation (LRF) is the nation’s largest non-profit organization devoted exclusively to funding innovative lymphoma research and providing people with lymphoma and healthcare professionals with up-to-date information about this type of cancer. LRF’s mission is to eradicate lymphoma and serve those touched by this disease. For more information on the LRF, visit their website or call the LRF National Headquarters at 212.349.2910.

National Institute of Arthritis and Musculoskeletal and Skin Diseases

The National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) is one of 27 Institutes and Centers at the National Institutes of Health (NIH), the nation’s premier biomedical research agency. Established in 1986, the NIAMS supports research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases; the training of basic and clinical scientists to carry out this research; and the dissemination of information on research progress in these diseases.

National Cancer Institute

The National Cancer Institute (NCI) is the federal government's principal agency for cancer research and training. NCI leads, conducts, and supports cancer research across the nation to advance scientific knowledge and help all people live longer, healthier lives.

National Organization for Rare Disorders

NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 260 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.