Children & Young Adult

Cancer diagnosis before you’ve had a chance to experience life’s milestones can be devastating. But, you are not alone in these feelings. This section includes information specific to younger patients and links to organizations dedicated to providing a community for young cancer patients and survivors.

Child Patient
FROM GUIDE CONTRIBUTORS

Children and Young Adults with Cutaneous Lymphoma

While rare, younger individuals may receive a cutaneous lymphoma diagnosis. What is important to know about how it is diagnosed, treated and the long-term concerns?

An overview of cutaneous lymphoma and younger patients

Younger Patients and Treatment

Couple with physician
FROM GUIDE CONTRIBUTORS

Fertility

Even if you aren’t currently thinking about having a family, aspects of family planning often need to be considered when choosing a therapy for your cutaneous lymphoma.

Facebook Live: Fertility and Younger Patients

January 2020: Facebook Live event focused on how cutaneous lymphoma and its treatment may impact those contemplating having children and/or younger patients. Dr. Neha Mehta joined Susan Thornton, CEO, to share insights regarding fertility, young patients and cutaneous lymphoma.

Dr. Mehta is assistant professor and researcher with a special interest in cutaneous T-cell lymphomas at the Washington University in St. Louis, Missouri.

Webinar: Managing Your School Years

June 2022 - Cutaneous Lymphoma can be hard to deal with and even harder if you are a child or a teenager. Ricky Kitchen, a High School Intervention Specialist with a medical social work background, discusses various ways to support younger patients during their school years and identifies valuable resources that can assist the student and their family.

Speaker: Ricky Kitchen, MSW, MA

Federal student loan payments - Deferment and Forbearance

Alert! The U.S. Department of Education has made available a new cancer treatment deferment form. Borrowers who are undergoing cancer treatment may request a deferment of their federal student loan payments. A deferment or forbearance allows you to temporarily stop making your federal student loan payments or to temporarily reduce the amount you pay. Find out if you qualify for a deferment or forbearance.

SAMFund

The SAMFund is a unique nonprofit organization created to assist young adult survivors of cancer with a successful transition into their post-treatment life by providing financial support through the distribution of grants and scholarships. For more information, visit their website or call 617.938.3484.

Ulman Cancer Fund for Young Adults

The Ulman Cancer Fund for Young Adults is committed to helping young adults continue their education after being affected by cancer through their own diagnosis or the diagnosis of a loved one. For more information, visit their website or call 888.393.FUND (3863).

Camp Discovery

For young people with chronic skin conditions, Camp Discovery offers a summer camping experience unlike any they’ve had before. Every year, the American Academy of Dermatology sponsors a week of fishing, boating, swimming, water skiing, arts and crafts, and just plain fun.

Camp Mak-A-Dream

One week can change a lifetime. This is the core belief at Camp Mak-A-Dream. The organization’s mission is to provide a medically supervised, cost-free Montana experience, in an intimate community setting, for children, young adults and families affected by cancer. Retreats are offered for adult cancer survivors, young adults, kids and other groups. For more information, visit their website or call 406.549.5987.

National Children’s Cancer Society

For survivors of childhood cancers, the National Children’s Cancer Society (NCCS) has created a program called Beyond The Cure. The mission of Beyond The Cure is to help childhood cancer survivors integrate the cancer experience into their new life as survivors and successfully handle the challenges that are ahead of them and to celebrate survivorship. For more information, visit their website or call 800.5.FAMILY (32-6459).

Stupid Cancer

Stupid Cancer (aka: I’m Too Young For This! Cancer Foundation) is a nonprofit organization that empowers young adults affected by cancer through innovative and award-winning programs and services. This Foundation is the largest support community in the United States for this underserved population and serves as a bullhorn for the young adult cancer movement.

Moving Forward: Perspectives from Survivors and Doctors

The American Society of Clinical Oncology (ASCO) and the LiveStrong Foundation have a video series for young adults with cancer featured on ASCO’s patient information website Cancer.Net. The series, “Moving Forward: Perspectives from Survivors and Doctors,” addresses critical issues that young adults with cancer may face and helps them better understand and cope with challenges related to their diagnosis. These videos are available free of charge as a resource for young adults to better understand and cope with their diagnosis.