Clinical Trials

About Clinical Trials

Clinical trials are research studies that investigate new or experimental treatments in patients living with a specific disease such as cutaneous lymphoma. These studies are important because they contribute to the overall knowledge and progress of the understanding of cutaneous lymphoma as well as playing an instrumental role in the development and FDA (Food and Drug Administration) approval of new therapies. People who are willing to participate in clinical trials can benefit personally while helping all cutaneous lymphoma patients and potentially furthering important cutaneous lymphoma research.

Physician & Patient
Patient Resources

Clinical Trials: A Pathway to Treatment
Clinical trials are research studies that investigate new or experimental treatments in patients living with a specific disease. Clinical trials empower patients to play an active role in their own care, contribute to the understanding around a disease, and open them up to access new treatments before they are widely available.
Clinical Trials

Clinical Trials - Myths and FAQs
Unsure whether or not you should participate in a clinical trial? Learn some of the common myths about participating and get answers to frequently asked questions.
Research

Research in Cutaneous Lymphoma: A Broad View
Since the development of the “scientific method,” people have been engaged in research in efforts to answer questions, solve problems, and add to our overall knowledge. Nowhere is this more evident than in the medical field, and in the study of cutaneous lymphoma.
Patient Resources

Facebook Live Interview: Cecilia Larocca, MD and Marianne Tawa, RN, MSN, ANP
April 2018: Dr. Cecilia Larocca and Marianne Tawa, RN, MSN, ANP, provide a "101" course in the clinical trials, sharing important information to consider if you are interested in participating in a trial. Dr. Larocca and Ms. Tawa are from the Dana Farber Cancer Institute.
Clinical Trials

ClinicalTrials.gov
The US National Institutes of Health (NIH), through its National Library of Medicine (NLM), has developed this site in collaboration with the Food and Drug Administration (FDA). Clinicaltrials.gov offers up-to-date information for locating federally and privately supported clinical trials for a wide range of diseases and conditions. ClinicalTrials.gov contains tens of thousands of clinical studies sponsored by the National Institutes of Health, other federal agencies, and private industry. Studies listed in the database are conducted throughout the United States and in over 130 countries, and searches may be conducted by diagnosis, by sponsor or by recruitment status. ClinicalTrials.gov provides information about a trial’s purpose, who may participate, locations, and contact information to learn more details. In addition to providing listings, the website offers detailed information to help the reader understand how clinical trials are structured and governed.
Clinical Trials

NCI: Clinical Trial Information for Patients and Caregivers
The National Cancer Institute provides basic information about clinical trials to help you understand what's involved in taking part. Learning all you can about clinical trials can help you talk with your doctor and make a decision that is right for you.
Clinical Trials

NIH Clinical Research Trials and You
The National Institute of Health provides basic information on why and how you can participate in clinical trials. "It's your involvement that helps researchers to ultimately uncover better ways to treat, prevent, diagnose and understand human disease."
Patient Resources

Facebook Live: Ellen Kim, MD
February 2019: In part three of our early stage treatment presentations, Dr. Ellen Kim provides an overview of important information to know when considering participation in a clinical trial for early stage disease. She also responded to questions from the audience related to clinical trials and other early stage treatments. Dr. Kim is a Professor of Dermatology at the University of Pennsylvania in Philadelphia, PA.