Community & Educational Resources

The Cutaneous Lymphoma Foundation offers a variety of educational resources through live events, free publications, and expert articles and videos. We also help create a cutaneous lymphoma community through sharing personal stories of help and hope and our patient networking groups.

DO I NEED TO SEE A SPECIALIST?

If a treatment center that has cutaneous lymphoma specialists isn't located nearby, what are your options? How important is it to see a specialist? Cutaneous lymphoma experts provide answers to the question: "Should I visit a specialty center and what if there isn't a specialty center close to me?"

DO I NEED TO SEE AN ONCOLOGIST, DERMATOLOGIST OR BOTH?

Cutaneous lymphoma affects white blood cells that live in the skin, so do you need to see a dermatologist or oncologist or both? Our cutaneous lymphoma experts provide answers to the question: "When should I see a oncologist vs. dermatologist?"

Why do treatments take such a long time?

Starting a treatment plan is a very hopeful time. However your response may not be immediate. Why? Cutaneous lymphoma experts provide answers to the question: "Why do treatments take such a long time? If I choose an aggressive treatment would I get better quicker?"

2017 2-Day Patient Conference - Manhattan Beach, CA

Video recordings and available presentation slides from the 2017 2-Day Patient Conference - Memphis Beach, CA

MY PERSONAL JOURNEY WITH CUTANEOUS LYMPHOMA: Danna Wessels & Nancy Noble

Danna Wessels and her spouse, Nancy Noble, share their personal story of Danna’s stem-cell transplantation. Their experience provides an honest portrayal of the challenges faced by both patient and caregiver.

MY PERSONAL JOURNEY WITH CUTANEOUS LYMPHOMA: LAUREL CARLSON

Cutaneous Lymphoma Foundation Board Member Laurel Carlson shares her personal journey with cutaneous lymphoma.

MY PERSONAL JOURNEY WITH CUTANEOUS LYMPHOMA: Donna Hussey

Author and nurse, Donna Hussey shares her personal journey living with mycosis fungoides.

My Personal Journey with Cutaneous Lymphoma: Christopher Shipp

Christopher Shipp shares his personal journey with cutaneous lymphoma as a young husband and father.

My Personal Journey with Cutaneous Lymphoma: Jan Paro

Janet "Jan" Paro shares her experience living with cutaneous lymphoma and finding hope and empowerment through attending a Cutaneous Lymphoma Foundation 2-Day Patient Conference.

My Personal Journey with Cutaneous Lymphoma

JC Ephraim shares his experience being diagnosed with cutaneous lymphoma and treatment journey. JC also shares the positive impact the Cutaneous Lymphoma Foundation has made in his life.

CUTANEOUS LYMPHOMA FOUNDATION FORUM Newsletter

The Cutaneous Lymphoma Foundation publishes a printed newsletter, Forum, which provides relevant, timely cutaneous lymphoma news, information and resources. The most recent issues of the Forum are available to download or read online.

Networking Groups

Meeting others who are affected by cutaneous lymphoma in person can be an important part of building a support network. The Cutaneous Lymphoma Foundation has networking groups to meet that need.

My Personal Journey with Cutaneous Lymphoma

Brett Weiss shares his experience of being diagnosed with cutaneous lymphoma as a young adult.

You Are Not Alone

Joe E. shares his personal experience of being diagnosed with cutaneous lymphoma and his suggestions for those who are newly diagnosed.