Patient Resources

Navigating My Diagnosis

When you've been diagnosed with a rare disease like cutaneous lymphoma, it can be difficult to digest all the information you may need to know. We've provided a wealth of information to help you navigate to your best life while living with cutaneous lymphoma.

Answers from the Experts

Vaccinations: A Brief Summary
Is it safe for individuals with cutaneous lymphoma to get vaccinations? The answer has changed over the years. Provided is a brief summary of currently known safe vaccinations.
Navigating My Disease

Lab Tests in Staging Cutaneous Lymphoma
Laboratory studies are an important part of accurate diagnosis of cutaneous lymphomas.
Navigating My Disease

Which Type of Doctor Should I See and When?
Being diagnosed with cutaneous lymphoma can be a difficult time. Determining which physician (dermatologist, oncologist or hematologist) to work with can be confusing. Dr. Laura McGirt provides guidelines for choosing.
Navigating My Disease

OBTAINING A PROPER CUTANEOUS LYMPHOMA DIAGNOSIS
Uncommon diseases pose a number of challenges, including difficulty getting an accurate diagnosis. A definitive diagnosis will help inform treatment decisions and potentially yield better patient-related outcomes over time.
Navigating My Disease

Staging Cutaneous T-cell Lymphoma
Staging describes how much of the body is affected by cutaneous lymphoma and where. Identifying your stage is important in determining appropriate treatment.
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IMPORTANT QUESTIONS TO ASK
Becoming informed when diagnosed with cutaneous lymphoma is important, but knowing what questions to ask your physician can be a challenge. Our clinical experts provide their recommendations.
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THERAPY SIDE EFFECTS
Cutaneous lymphoma experts provide answers to the question: "What are the common side effects for the therapies?"
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DO I NEED TO SEE A SPECIALIST?
If a treatment center that has cutaneous lymphoma specialists isn't located nearby, what are your options? How important is it to see a specialist? Cutaneous lymphoma experts provide answers to the question: "Should I visit a specialty center and what if there isn't a specialty center close to me?"
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DO I NEED TO SEE AN ONCOLOGIST, DERMATOLOGIST OR BOTH?
Cutaneous lymphoma affects white blood cells that live in the skin, so do you need to see a dermatologist or oncologist or both? Our cutaneous lymphoma experts provide answers to the question: "When should I see a oncologist vs. dermatologist?"
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Why do treatments take such a long time?
Starting a treatment plan is a very hopeful time. However your response may not be immediate. Why? Cutaneous lymphoma experts provide answers to the question: "Why do treatments take such a long time? If I choose an aggressive treatment would I get better quicker?"
Finding Support
Patient Resources

Finding Support
Cutaneous lymphoma will present you with challenges. But, try to remember that you do not have to cope with your illness alone.
Answers from the Experts

Cutaneous lymphoma 101
Knowing where to start when you learn you have cutaneous lymphoma can be a challenge. Cutaneous lymphoma specialist Dr. Stuart Lessin provides an overview of the important information and concepts every patient with cutaneous lymphoma and caregivers should know.
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Should I be exposing myself to the sun?
Is it okay to spend time in the sun if you have cutaneous lymphoma? Our clinical experts explore when sun exposure is beneficial and when it should be avoided.
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GETTING A SECOND OPINION
When is getting a second opinion a good decision? Our panel of experts offer their recommendations on when you should seek out another professional opinion.