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Cutaneous Lymphoma Foundation Announces New CEO  With over 15 years of nonprofit management, fund development, communications, marketing and public relations experience, Jennifer A. Viano joined the Cutaneous Lymphoma Foundation in April 2010 as its new Chief Executive Officer. read more...
What is cutaneous lymphoma?
Cutaneous lymphoma is a general term for many lymphomas of the skin including:
- cutaneous T-cell lymphoma
- mycosis fungoides
- Sézary syndrome
- cutaneous anaplastic large cell lymphoma
- adult T-cell leukemia/lymphoma
- peripheral T-cell lymphoma
- lymphomatoid granulomatosis
- granulomatous slack skin disease
- B-cell lymphoma
- pagetoid reticulosis
- and more read more...
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FREE Educational Materials Available
The Cutaneous Lymphoma Foundation has several educational materials available. read more...
National Comprehensive Cancer Network (NCCN) Practice guidelines in Oncology for Mycosis Fungoides/Sezary Syndrome
Here is the link to download the document (MF/SS guidelines are on pages 62-70)
In the News
July 19, 2010: Cutaneous Lymphoma Foundation Recognized in Prominent Global Medical Journal
May 6, 2010: FDA Working to Resolve Methoxsalen Shortage
February 4, 2010: TenX Biopharma Licenses Zanolimumab From Genmab
December 7, 2009: Celegen to Acquire Gloucester Pharmaceuticals
November 5, 2009: FDA Approves Gloucester Pharmaceuticals' ISTODAX® for Patients with Cutaneous T-cell Lymphoma
September 2, 2009: Allos Therapeutics Announces FDA Advisory Committee Recommends Accelerated Approval of FOLOTYN (pralatrexate) for the Treatment of Patients with Relapsed or Refractory Peripheral T-cell Lymphoma
September 2, 2009: FDA Advisory Committee Recommends Gloucester Pharmaceuticals' Romidepsin for Approval for Cutaneous T-cell Lymphoma
July 23, 2009: Allos Therapeutics Launches Peripheral T-Cell Lymphoma Website
June 29, 2009: Yaupon Therapeutics Completes Patient Enrollment for Pivotal Phase 2 Study of Clearazide for Treatment of Cutaneous T-cell Lymphoma
May 30, 2009: Positive data on oral belinostat in phase I dose escalating study in Lymphoma presented at ASCO
May 26, 2009: Allos Therapeutics Announces FDA Accepts Pralatrexate NDA for Filing and Grants the Application Priority Review Status
March 24, 2009: Allos Therapeutics Appoints David M. Stout to Its Board of Directors
March 23, 2009: U.S. FDA Approves New THERAKOS(TM) CELLEX(TM) Photopheresis System
March 13, 2009: New NCCN Guidelines for Primary Cutaneous B-Cell Lymphoma and Updates to NCCN Guideleinse for Non-Hodgkin's Lymphomas
The most reliable, up-to-date information about cancer is available in Spanish! The National Cancer Institute (NCI) is pleased to announce the launch of a new Spanish Web site, Cancer.gov en español. Information about mycosis fungoides and Sezary syndrome is available en español here. (This link will open in a new window.)
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Cutaneous Lymphoma Patient
Educational Forums |
 Chicago, Illinois, September 25, 2010
Cutaneous Lymphoma Patient Educational Forum at the First World Congress on Cutaneous Lymphomas
Read more... |
 San Francisco, California, September 24-26, 2010
2010 North American Educational Forum on Lymphoma, in collaboration with the Lymphoma Research Foundation
Read more... |
 Pittsburgh, Pennsylvania, October 2, 2010
13th Annual Brian V. Jegasoth Support Group for CTCL
Details coming soon! |
 Minneapolis, Minnesota, October 16, 2010
Lymphoma Workshop, in collaboration with the Lymphoma Research Foundation
Details coming soon! |
 Teleconference: Medical Update on T-Cell Lymphomas Part I: Update on Cutaneous T-Cell Lymphoma, September 29, 2010
Teleconference, in collaboration with the Lymphoma Research Foundation and CancerCare
Read more... |
Teleconference: Medical Update on T-Cell Lymphomas Part II: Update on Cutaneous T-Cell Lymphoma, October 20, 2010
Teleconference, in collaboration with the Lymphoma Research Foundation and CancerCare
Read more... |
 Salt Lake City, Utah, October 23, 2010
Cutaneous Lymphoma Patient Educational Forum
Details coming soon! |
Dr. Marie-France Demierre
 It is with great sorrow that we report the sudden loss of Dr. Marie-France Demierre. One of cutaneous lymphoma patients' great advocates, Dr. Demierre died on Tuesday, April 13, 2010. She was Director of the Skin Oncology Program at Boston Medical Center and Professor of Dermatology and Medicine at Boston University School of Medicine.
Dr. Demierre's work in cutaneous lymphoma included an important study, in collaboration with the Cutaneous Lymphoma Foundation, on the quality of life for cutaneous lymphoma patients.
She was known as a woman full of light--always friendly, caring, and smiling. She will be sorely missed by her friends, colleagues, and patients. She is survived by her husband and two children.
In lieu of flowers, donations in memory of Dr. Demierre may be made to the Marie-France Demierre Memorial Fund at Boston Medical Center.
Visit the Marie-France Demierre tribute website to view photos and leave memories.
Oxsoralen-Ultra (Methoxsalen Capsules, USP, 10mg) is now available again in the United States on a limited supply basis
You should be able to get your prescriptions filled through your pharmacies. Please instruct the pharmacy to work with their wholesalers to arrange for shipment. If you have any questions about product availability, please contact Valeant’s Customer Care group at 1-800-556-1937. We are pleased that the company was able to work with the FDA to address this drug shortage in a timely manner. Many organizations were involved in advocating for the patients to get this product back on the market.
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Giving
The Cutaneous Lymphoma Foundation is now a proud member of the Combined Federal Campaign. Make your donation to CFC #12294
You may also donate through the United Way. Our United Way number is 042972 |
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Cutaneous Lymphoma Foundation Bike Jerseys
 Show your support with these custom bike jerseys!
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Did you miss a Cutaneous Lymphoma Patient Educational Forum? Many of the presentations from past events are available here. |
Just added!
CTCL Overview and Treatment Options video with Dr. Francine Foss and Judy Jones
North American Educational Forum on Lymphoma Webcast AND Cutaneous Lymphoma Basics and Treatment Options Podcast |
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Cutaneous T-Cell Lymphoma Financial Assistance Program from Patient Services Incorporated
The PSI CTCL Co-pay assistance program is designed to help those eligible afford the cost of their expensive prescription medication (oral and topical). To apply for CTCL financial assistance, please call a PSI Customer Service Representative toll free at (800) 366-7741.
Medicare Formulary Finder for Prescription Drug Plans
The Formulary Finder for Prescription Drug Plans will allow you to find plans in your state that match your required drug list. Click here to visit the Formulary Finder for Prescription Drug Plans on medicare.gov.
What happened to the Mycosis Fungoides Foundation? Read the press release... |
